Gunn Ammitzbøll, MSc PT, PhD, is a postdoc at Danish Cancer Society Research Center and Danish Research Center for Equality in Cancer (COMPAS). Her current work involves epidemiological and interventional research in cancer survivorship, and in particular in women’s health, late effects after cancer including cancer related lymphedema and exercise oncology. She is a board member of the Danish Society of Physical Therapists in Oncology and Palliation where her work mainly evolves around professional education and development. Further, she is currently involved in the work with national clinical guidelines in breast cancer rehabilitation.
Dr Tobias Bertsch, MD, PhD has been a senior consultant at the Foeldi Clinic in Hinterzarten, Germany since 2005, specializing in lymphology and bariatric medicine. He also serves as Secretary General of the German Society of Lymphology.
Dr. Bertsch is one of only two physicians in Germany who consults in an outpatient setting approved by the health insurance commission with patients who have lymphedema and lipedema. Dr. Bertsch and his team consult with approximately 4000 patients per year.
In 2012, Dr. Bertsch earned Specialist Certification of Obesity Professional Education (SCOPE), the only internationally-recognized certification in obesity management for health care professionals.
He lectures extensively throughout Germany but also in other European countries, Canada and the United States.
Professor Håkan Brorson, MD, PhD is Senior Consultant Plastic Surgeon at the Department of Clinical Sciences, Lund University, Plastic and Reconstructive Surgery, Skåne University Hospital, Malmö, Sweden. He is Professor of plastic surgery at Lund University, Lund, Sweden. American National Board Exam 1983. Board certified in Medicine, MA and Faculty License, BIDMC, Harvard Medical School, Boston, 2005 - 2006. His research is focused on adipose tissue in lymphedema: CT, MRI/Spectroscopy and DXA, microarray, RT-PCR, metabolomics, lipidomics, incidence of erysipelas. He has trained 42 teams around the world to treat lymphedema with liposuction, a treatment that he developed over 30 years ago.
Abstract: From Lymph to Fat – Lessons Learned During 26 Years of Complete Reduction of Lymphedema
Associate Director of the Lymphedema Research Program, Massachusetts General Hospital, Boston, MA Physical Therapy Clinical Specialist, Massachusetts General Hospital, Boston, MA Cheryl earned her physical therapy degree at the University of Toronto, Canada. She completed her lymphedema certification with Drs. Albert and Olivier Leduc in London, England, and with Klose Training, in Boston, USA. Cheryl’s clinical focus is on the evaluation and treatment of patients during and after breast cancer treatment, for issues such as surveillance and early intervention for lymphedema, shoulder morbidity, and deconditioning resulting from breast cancer and its treatment. Cheryl’s main research interests include risk factors, prospective surveillance, symptoms and early intervention for breast cancer-related lymphedema
graduated in Medicine and specialized in Angiology.
She is head of the Angiology out-patients’ Department and Territorial Rehabilitative Operative Unit, in charge of lymphoedema patients, for NHS-Terni-Italy and responsible for “Pianeta Linfedema” Study Centre.
She is one of the founders and member of the Executive Committee of the Italian Lymphoedema Framework and member of the Executive Committee of the European Society of Lymphology.
She has participated as a lecturer in university masters, refresher courses and training in the lymphological field, published numerous papers, has been speaker at national and international conferences and mentored experimental theses on lymphoedema.
Dr. Andrea Cheville is Professor of Physical Medicine and Rehabilitation and PMR Department Chair at Mayo Clinic in Rochester, MN. She received her MD degree from Harvard Medical School in 1993 and her Master of Science in Clinical Epidemiology degree from the University of Pennsylvania in 2006. Areas of clinical and research interest are lymphedema and cancer rehabilitation, palliative medicine, and patient-reported outcomes. She is board-certified in PMR, Pain Medicine, and Palliative Care. She has received funding from the NIH, National Cancer Institute, and the U.S. Department of Defense. She was elected to the National Institute of Medicine in 2016.
Robert J. Damstra works since 1992 as dermatologist at the Nij Smellinghe hospital Drachten (Netherlands) in a team with 6 dermatologists, 2 surgeons and many paramedical specialists.
In 2009 he obtained his PhD with the thesis “diagnostic and therapeutical aspects of lymphedema” at Maastricht University (Prof. Dr. P. Steijlen).
In 2005 he founded the Dutch expert center for lympho-vascular diseases (ECL) which expanded to a center with annual 500 new tertiary referrals, an outpatient clinic which thousands of patients, a clinical department for 12 patients providing both interdisciplinary diagnostics, operative and conservative treatments. He was chair of the first (2003) and second (2014) Dutch guideline working group on lymphedema. In 2023 the third guideline is planned.
In 2015 the ECL Drachten is recognized by the ministry of health as national expert center for primary and pediatric lymphedema. The ECL became member of the European Reference Network (ERN) in the VASERN-group (See www.vascern.eu). He is chair of the primary and pediatric working group (PPL-WG). Together with expert centers all over Europe they cooperate to enhance crossborder healthcare, improve quality of care and provide information for patients in Europe. Multicenter research is planned.
Finally, he is member of the European Lipoedema Forum and worked with other under the lead of T. Bertsch MD PhD on the European consensus document for lipoedema.
Ellie is a Registered Adult Nurse with a clinical background in Dermatology. She works within the Research and Innovation stream of the Institute of Excellence at Nottingham University Hospitals Trust. Ellie is currently completing her PhD in Business and Management (Health) Within CHILL, at the University of Nottingham Business School, exploring the coproduction of care for service-users living with chronic oedema, within a context of socioeconomic deprivation
Ellie’s clinical role focusses on evidence-based practice and skin integrity. She is the vice-chair of the NUH Evidence-based Practice council and leads the annual NUH Evidence in Nursing, Midwifery and ODP course.
Dr. Alison is a qualitative sociological researcher interested in gender, embodiment and emotional labour as they apply to health care organisation and maternal wellbeing. Alison is interested in a range of qualitative methods in sociological research, including interviews, critical discourse analysis and ethnography, as well as standpoint and critical realist epistemologies. She has also published extensively on the work of Noam Chomsky. In her most recent research she has written on embodiment in pregnancy guides, maternal presenteeism and emotional labour in A&E. She teaches and researches at the University of Nottingham (since 2002) and has supervised 15 PhD students to completion, with a further 7 underway. Eight have had ESRC doctoral scholarships. Topics range from Oedema care pathways, mental health (recovery narratives, peer workers, spirituality, friendship), as well as courage and compassion in care, Alison is Director of an MA in Research Methods (Health) and her recent teaching is mostly research methods
Gabriele Erbacher has been a psychologist and psychotherapist at the Foeldi Clinic- European Center of Lymphology - in Hinterzarten, Germany, since 2013. Her special working fields are the psychological assessment and treatment of obese patients within the obesity program. In this multimodal program severe obese patients who suffer from lymphoedema as well as from lipoedema are being prepared for bariatric surgery.
Furthermore, she is a specialist for the treatment of patients suffering from lipoedema. In the Foeldi Clinic she has implemented the first psychotherapy group for lipoedema patients that complements the comprehensive therapeutic approach.
She also is a member of the European Lipoedema Forum, which is the international expert group that created a consensus on the diagnostics and treatment of lipoedema which was published in February 2020.
Gabriele is the co-author of the article series about Lipoedema - Myths and Facts that has been published together with Dr. Tobias Bertsch and she is lecturing worldwide about lipoedema.
Abstract: Psychosocial aspects of lipoedema
Consultant for metabolic and bariatric surgery at the Center for Metabolic and Bariatric Surgery, Department of Surgery, Medical Center, University of Freiburg.
MD, Specialist in Physical Medicine and Rehabilitation, Working in the Lymphedema Unit in University Hospital La Fe, VALENCIA., since July 2000.
Associate professor at University of Valencia
Dr Kristiana Gordon is a Consultant in Dermatology & Lymphovascular Medicine. She is Clinical Lead of the Lymphoedema Service at St George’s Hospital, London where her team cares for thousands of patients with lymphoedema and lipoedema from across the UK. She has completed specialist dermatology training and a doctorate in primary lymphoedema, and continues to pursue her research interests within the rapidly developing field of lymphovascular medicine and lipoedema
Professor Sandi Hayes is a Senior Research Fellow at the Menzies Health Institute Queensland, Griffith University, Brisbane, Australia. Her expertise in epidemiology and exercise science has enabled a cancer survivorship program of research, which has improved understanding of the physical and psychosocial concerns experienced during and following treatment for cancer (in particular, lymphoedema), as well the role of exercise in the prevention and management of these concerns.
Ad is specialized in lymph- and lipedema, geriatric related problems and chronic diseases. Related to chronic diseases his main focus is the group of patients with cancer related disabilities.
As a researcher and board member of the for Center of Expertise Lymphovascular Medicine he is responsible for education and research & development.
One of his main achievements in the last couple of years was the introduction and implementation of the International Classification of Functioning, Disability and Health in daily care in the Expert Centre and their network of care, including the use of clinimetrical instruments. Self-management and the empowerment of patients is another of his main fields of interest.
Ad was member of the working group for the development of the Dutch guidelines for lymphedema and lipedema in 2013 and 2014.
Since September 2016 he is a PhD student at the Hanze University of applied sciences in Groningen. His research topics are related to lymph- and lipedema.
Since 2018 he has been closely involved in the development of the European consensus document on Lipedema.
Vibeke Elisabeth Hjortdal, MD, DMSC, ph.D.
Professor (Congenital Heart Surgery) and consultant surgeon, Dept Cardio-Thoracic Surgery, Rigshospitalet, University of Copenhagen, Denmark
Tonny Karlsmark, MD, Assoc. Professor
Tonny Karlsmark is consultant and associated professor in Dermato-venereology working at Bispebjerg Hospital, University of Copenhagen, Denmark. As former head of the department for 15 years, he has experience as well as a diploma in National Health Service Management. He has held Honorary positions such as chairman of the Danish Dermatological Society 2003-2005 and chairman of the Danish Lymphoedema Framework (DLF) from 2010.
His main research areas include wound healing and treatment of chronic oedema. In 1990 he defended
his thesis about “Electrically induced dermal changes” – a morphologic study of porcine skin after transfer of low-moderate amount of electrically energy.
He has published more than 115 articles in international journals and acts as advisor for more than 10 Ph.D. degrees and made opposition (acting as critic) for 1 doctoral thesis and 9 Ph.D. degrees.
David H. Keast BSc(Hon), MSc, DipEd, MD, CCFP, FCFP(LM)
Dr. Keast is the Medical Director of the Chronic Wound and Lymphedema Consultation Clinic at the Parkwood Institute in London Canada. He is Clinical Adjunct Professor of Family Medicine, Schulich School of Medicine and Dentistry, Western University (London). Dr. Keast is an Associate Scientist, Lawson Health Research Institute, Parkwood Institute Research. He is Co-director of the Canadian Lymphedema Framework, Secretary Board of Directors of the International Lymphedema Framework and President of the World Alliance for Wound and Lymphedema Care.
Michelini Sandro, Medical Doctor, is the author of the texts “Theoretical-Practical Manual of Vascular Rehabilitation” and ‘Phlebolymphology: from diagnosis to the therapy’, professor for over 50 courses of Theoretical-Practical Vascular Rehabilitation for more than 25 years, medical officer of the Vascular Rehabilitation Day Hospital of the hospital San Giovanni Battista of Rome since 2006, , medical officer of the O.U. Vascular Rehabilitation at the Vaclav Vojta Rehabilitation Center in Rome since 2003, past president of the European Society of Lymphology (2008-2014), past president of International Society of Lymphology (2017-2019), President of the Italian Lynmphoedema Framework. Present Chief of Vascular Rehabilitative Service of Marino Hospital – ASL Roma6
Karen Morgan is a registered nurse by background. She was appointed the National Lymphoedema Education lead in Wales in 2012 and is Deputy to Dr Melanie Thomas National Clinical Lead for Lymphoedema in Wales. She has been pivotal in developing and delivering accredited lymphoedema education in Wales utilising Agored work based credits. In 2016 led the on the ground clinical educators project funded by the Welsh Government Health Technology and Innovation Fund. Developing jointly The Chronic Oedema “Wet Leg Pathway” as an output. Awarded the British Journal of Nursing Chronic oedema Nurse of the Year for this work in 2018.
Rhian is National Researcher for Lymphoedema Network Wales, Associate Lecturer for Swansea University, Wales and programme lead for postgraduate lymphoedema education University of Glasgow, Scotland. Her PhD produced The Asset-Based Collaborative Working model from action research of lymphoedema specialists developing an information website for patients, carers and health professionals in the community. Her recent research has focussed on education need evaluation and genital oedema. She developed the first genital oedema specific self-report tool for men (LGUCQ) and will be presenting results of an international study of the education need of lymphoedema professionals to manage genital oedema.
Jørgen Rungby serves as Chief Physician and Professor at the Department of Endocrinology, Bispebjerg Hospital and University of Copenhagen, Denmark.
Jørgen Rungby graduated as MD in 1984, specialized in internal medicine and endocrinology and, in 1990, completed his doctorate in neuroscience.
He is past chairman of the Danish Endocrine Society and has served on national and international committees and boards within the field of endocrinology.
He has supervised more than 25 PhDs and authored or co-authored more than 220 publications. More recently, his research focuses on metabolic and hormonal regulation of central nervous system functions in diabetes and neurodegenerative diseases.
Professor of Radiation Oncology, Harvard Medical School, Breast Radiation Oncology, Massachusetts General Hospital, Director, Lymphedema Research Program,
Dr Alphonse Taghian is Professor of Radiation Oncology at Harvard Medical School and Director of the Lymphedema Research Program at Massachusetts General Hospital in Boston. He earned his Medical Degree from Alexandria University in Egypt. He completed his residency in Radiation Oncology in France, after which he pursued his PhD in Radiobiology from Paris University.
An internationally recognized leader in breast radiation oncology and lymphedema research, Dr Taghian has published more than 200 peer reviewed articles, general reviews and chapters. He has edited 2 books. He was awarded several NIH grants totaling around $2.7 Million for research in breast cancer related lymphedema.
Melanie is a Chartered Physiotherapist and is the National Clinical Lead for Lymphoedema Services in Wales, UK. She was instrumental in developing equitable lymphoedema services in Wales and now manages the award winning Lymphoedema Network Wales. Melanie qualified as a lymphoedema teacher in 2005 as part of the Macmillan Lymphoedema Education Programme and leads on the education programme in Wales, delivering MLD and lymphoedema advanced update courses. Melanie has been the principal investigator in numerous research trials in lymphoedema. She has just submitted her Doctorate with Swansea University on the lymphoedema risk reducing recommendations for people treated for breast cancer. She has presented and published widely in delivering innovations in lymphoedema care. Melanie is currently the Programme Manager for the delivery of the Lymphatic Venous Anastomosis super microsurgery development and the national Paediatric Services in Wales. In 2012, Melanie became the first Macmillan Cancer Fellow. In 2013 was awarded a MBE in the Queen’s Birthday Honours. In 2014, she was presented with a Distinguished Service Award by the Chartered Society of Physiotherapy and in 2015 was awarded a Fellowship by the Chartered Society of Physiotherapy. Melanie joined the Board of Directors for the International Lymphoedema Framework in June 2018.